Eliciting the experiences of the adolescent-parent dyad following critical care admission: a pilot study.
Dora L B WoodSophie GeogheganPadmanabhan RamnarayanPeter J DavisJohn V PappachanSarah GoodwinJo WrayPublished in: European journal of pediatrics (2018)
The main reported determinant of high-quality care was the quality of interaction with staff. The significance of these interactions and their environment depended on adolescents' awareness of their surroundings, which was often limited in ICU and changed significantly over the course of their illness. Qualitative interview methodology would be difficult to scale up for this group. What is known • Critically ill adolescents are usually treated on intensive care units optimised for older adults or younger children. • The way they access and experience health services may be different to most adolescent patients; existing quality criteria may not apply. What is new • Reported determinants of high-quality care were age-appropriateness of the environment, respectfulness and friendliness of staff, communication and inclusion in healthcare decisions. • The significance of these depended on adolescents' awareness of their surroundings, which was often limited and changed over the course of their illness.
Keyphrases
- young adults
- healthcare
- intensive care unit
- quality improvement
- physical activity
- childhood cancer
- palliative care
- end stage renal disease
- mental health
- newly diagnosed
- ejection fraction
- emergency department
- mechanical ventilation
- prognostic factors
- peritoneal dialysis
- pain management
- long term care
- patient reported outcomes
- health insurance