Public preferences regarding data linkage for research: a discrete choice experiment comparing Scotland and Sweden.

Mary Patricia TullyCecilia BernstenMhairi AitkenCaroline Vass

Published in: BMC medical informatics and decision making (2020)

This study suggests that the public living in Scotland and Sweden are open to using anonymised linked data in certain scenarios for research purposes but some caution is advisable if the anonymised linked data joins health to non-health data.

Keyphrases

healthcare
electronic health record
mental health
big data
public health
health information
emergency department
risk assessment
data analysis
machine learning
health promotion
human immunodeficiency virus