Living with a parent with ALS - adolescents' need for professional support from the adolescents' and the parents' perspectives.
Nina MalmströmBirgitta Jakobsson LarssonStefan NilssonJoakim ÖhlénIngela NygrenPeter M AndersenAnneli OzannePublished in: Amyotrophic lateral sclerosis & frontotemporal degeneration (2023)
Given the adolescents' need for information and understanding, healthcare professionals must actively work to reach the adolescents as early as possible. It is crucial to ensure that the adolescents are given the opportunity to be involved based on their own conditions, as well as to support the families to strengthen their communication.