Characterizing medical decision-making in sickle cell disease during childhood: Qualitative perspectives of caregivers.

Ariel O BlakeyChristina M AmaroJenna Sandler EilenbergAnnelise BrochierPatricia L KavanaghArvin GargMari-Lynn DrainoniKristin A Long

Published in: Pediatric blood & cancer (2024)

Findings highlight how processes underlying caregivers' decision-making are directly influenced and informed by caregivers' lived experiences. Future work should develop provider-initiated collaborative interventions to support medical decision-making.

Keyphrases

decision making
sickle cell disease
palliative care
healthcare
primary care
physical activity
current status
systematic review
young adults
childhood cancer