Exploring the Impact of Epidermolysis Bullosa on Parents and Caregivers: A Cross-Cultural Validation of the Epidermolysis Bullosa Burden of Disease Questionnaire.
Ashjan AlheggiAseel AlfahhadAbrar BukhariChristine BodemerPublished in: Clinical, cosmetic and investigational dermatology (2024)
This study highlights the need for support services for parents caring for patients with EB.