The societal cost of Huntington's disease: are we underestimating the burden?
Carys JonesM BusseL QuinnH DawesC DrewM KelsonK HoodA RosserR T EdwardsPublished in: European journal of neurology (2016)
Informal care was the largest driver of costs across all stages of HD; thus there is a need to also consider the needs of carers when planning services for people with HD.