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Coproduced resources to support parents caring for children with gastrostomies.

Bethan F PageEmily HarropTania BealeKatherine BoyceColette SmithSiobhan ButlerAlison SharrardCharles VincentAlex Ch Lee
Published in: Frontline gastroenterology (2022)
The resources described have been developed with and for families. Critically the videos are founded in the lived-experience of families, as well as the expertise of clinicians from community and hospital services. Similar resources are needed to support families performing other types of specialist care. The resources are freely available to any parent or clinical team.
Keyphrases
  • palliative care
  • healthcare
  • mental health
  • quality improvement
  • young adults
  • emergency department
  • affordable care act
  • adverse drug