A Comparison of Caregiver and Patient Preferences for Treating Duchenne Muscular Dystrophy.

Norah L CrossnohereRyan FischerElizabeth VroomPatricia FurlongJohn F P Bridges

Published in: The patient (2022)

Caregivers and patients had concordant preferences for treating Duchenne. Providers and regulators can trust both caregiver and patient report of preferences to inform medical decision making.

Keyphrases

decision making
duchenne muscular dystrophy
end stage renal disease
case report
ejection fraction
newly diagnosed
chronic kidney disease
muscular dystrophy
healthcare
palliative care
peritoneal dialysis
transcription factor
patient reported outcomes
health information