Understanding patient partnership in health systems: lessons from the Canadian patient partner survey.
Julia AbelsonCarolyn CanfieldMyles LeslieMary Anne LevasseurPaula RowlandLaura TrippMeredith VanstoneJanelle PandayDavid CameronPierre-Gerlier ForestDaniel SussmanGeoff WilsonPublished in: BMJ open (2022)
This survey is the first of its kind to examine at a population level, the characteristics, experiences and dynamics of a large sample of self-identified patient partners. Patient partners in this sample are a sociodemographically homogenous group, yet heterogeneous in the scope, intensity and longevity of roles. Our findings provide key insights at a critical time, to inform the future of patient partnership in health systems.