Developing a taxonomy of care coordination for people living with rare conditions: a qualitative study.
Holly WaltonAmy SimpsonAngus I G RamsayEmma HudsonAmy HunterJennifer JonesPei Li NgKerry Leeson-BeeversLara BloomJoe KaiLarissa KerecukMaria KokocinskaAlastair G SutcliffeStephen MorrisNaomi J FulopPublished in: Orphanet journal of rare diseases (2022)
Findings indicate that there are different ways of coordinating care across the six domains outlined in our taxonomy. This may help to facilitate the development and evaluation of existing and new models of care coordination for people living with rare conditions.