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Patient Priorities in Autoimmune Hepatitis: The Need for Better Treatments, More Education and Challenging Stigma.

Charlotte LloydJessica LeightonLin Lee WongAnna GouldingAnn BrownleePenney GrayEmma CulverNeil HallidayDoug ThorburnMichael A HeneghanDavid E J JonesCatherine ExleyJessica Katharine Dyson
Published in: Digestive diseases and sciences (2022)
This study provides insights into the realities of living with autoimmune hepatitis with clear issues around lack of support networks, need for patient empowerment and stigma surrounding liver disease. Patient priorities are better therapies to slow disease progression, avoiding corticosteroids and minimising side-effects. Patient willingness to participate in trials suggests that they are achievable provided they have the right design and clinical endpoints.
Keyphrases
  • case report
  • mental health
  • multiple sclerosis
  • healthcare
  • hiv aids
  • mental illness
  • quality improvement
  • drug induced