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Sociocultural Factors Influence on Burden and Stress of Caregivers of Children with Epilepsy.

Katharina SchillerChristelle DassiSaoussen BerrahmouneBirgit FrauscherKenneth A Myers
Published in: The Canadian journal of neurological sciences. Le journal canadien des sciences neurologiques (2024)
We evaluated stress and burden in epilepsy patient caregivers in a pediatric neurology clinic. Caregivers of 102 children with epilepsy completed the Caregivers' Assessment of Difficulty Index and a questionnaire regarding caregiver sociocultural characteristics. A multiple linear regression statistical analysis found that caregiver burden was significantly increased for those who had a second child with a chronic disease, sole caregivers and for those with children with drug-resistant epilepsy. Caregiver stress was significantly increased for caregivers with a native language other than English or French, caregivers who had a second child with a chronic disease and sole caregivers.
Keyphrases
  • palliative care
  • drug resistant
  • young adults
  • mental health
  • multidrug resistant
  • primary care
  • stress induced
  • pseudomonas aeruginosa
  • childhood cancer
  • patient reported