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Experience of telehealth in people with motor neurone disease using noninvasive ventilation.

Rosanna CousinsHelen Ashcroft-KelsoRob HalheadBiswajit ChakrabartiCarolyn Anne YoungRosanna CousinsRobert M Angus
Published in: Disability and rehabilitation. Assistive technology (2019)
Telemonitoring was positively experienced. The findings suggest this approach is empowering and effective in promoting patients' well-being, while potentially reducing unnecessary clinical contact.Implications for RehabilitationCare for people with MND demands a flexible approach to accommodate the diversity of clinical needs and relentless physical deterioration.Telehealth allows clinicians to provide person-centred care for everyone with MND through frequent monitoring.Holistic and rehabilitative service facilitated by telehealth is generally acceptable and preferred to routine appointments among MND NIV patients.Telehealth promotes time efficient engagement with professionals that leads to symptom awareness and interpretation, while benefiting physical and psychological well-being of MND NIV patients.
Keyphrases
  • ejection fraction
  • newly diagnosed
  • mental health
  • healthcare
  • palliative care
  • physical activity
  • depressive symptoms
  • intensive care unit
  • chronic pain
  • mechanical ventilation