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Health and kinship matter: Learning about direct-to-consumer genetic testing user experiences via online discussions.

Zhijun YinLijun SongEllen Wright ClaytonBradley A Malin
Published in: PloS one (2020)
This research demonstrates that online social media platforms can serve as a rich resource for characterizing actual DTC-GT experiences. The findings suggest that DTC-GT consumers' purchasing behaviors are associated with societal events and that future investigations should consider how DTC-GT challenges our understanding of kinship structure and function, genomic privacy, and the interpretation of health risks.
Keyphrases
  • health information
  • social media
  • mental health
  • healthcare
  • current status
  • public health
  • copy number
  • big data
  • advance care planning
  • dna methylation