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Invisible bleeds: Lived experiences and barriers to care for men with hemophilia.

Sumedha AryaFartoon M SiadPamela WiltonDavid PageLaurence Boma-FischerGeorgina FlorosRochelle WinikoffJerome TeitelMichelle Sholzberg
Published in: Journal of thrombosis and haemostasis : JTH (2021)
Men with hemophilia described significant symptom burden and areas of ongoing need. Collaborative efforts between hematologists, emergency room physicians, and surgeons to establish hospital-specific testing, treatment and referral guidelines, and regular hemophilia treatment center audits may help address these care gaps, providing more person-centered, equitable care. Future work is required to implement these strategies and monitor their effects.
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