Developing a conceptual model of symptoms and impacts in progressive fibrosing interstitial lung disease to evaluate patient-reported outcome measures.
Marlies WijsenbeekMaria Molina-MolinaOlivier ChassanyJohn FoxLiam GalvinKlaus GeisslerKatherine M HammittYong-Bum ParkTeng MouaEmily C O'BrienAshley F SlagleAnna KrasnowMatthew ReaneyMichael BaldwinNatalia MaleKlaus B RohrJeff SwigrisKaterina AntoniouPublished in: ERJ open research (2022)
The conceptual model improves understanding of the symptoms and impacts that living with PF-ILD has on patients' wellbeing. It can help to inform the choice of PROMs in clinical trials and highlight aspects to assess in the clinical care of patients with PF-ILD.
Keyphrases
- interstitial lung disease
- systemic sclerosis
- patient reported
- rheumatoid arthritis
- idiopathic pulmonary fibrosis
- patient reported outcomes
- clinical trial
- end stage renal disease
- ejection fraction
- newly diagnosed
- healthcare
- chronic kidney disease
- palliative care
- peritoneal dialysis
- open label
- chronic pain
- study protocol