Introducing a core dataset for real-world data in multiple sclerosis registries and cohorts: Recommendations from a global task force.

Tina ParciakLotte GeysAnne HelmeIngrid van der MeiJan A HillertHollie SchmidtSalter AmberMagd ZakariaRodden M Middleton Alexander StahmannPamela DobayElena Hernandez Martinez-LapiscinaPietro IaffaldanoKelly PlueschkeJuan I RojasMeritxell SabidóMelinda MagyariAnneke Van Der WaltFrancis ArickxGiancarlo Comi Liesbet M Peeters

Published in: Multiple sclerosis (Houndmills, Basingstoke, England) (2023)

The MS Data Alliance Core Dataset guides emerging registries in their dataset definitions and speeds up and supports harmonisation across registries and initiatives. The straight-forward, time-efficient process using a dedicated global multi-stakeholder task force has proven to be effective to define a concise core dataset.

Keyphrases

multiple sclerosis
electronic health record
big data
mass spectrometry
quality improvement
white matter
machine learning