Validation of a new instrument to measure disease-related distress among patients with haemophilia.
Christine L KemptonMary Michaels StoutVaughn BarryJanet FigueroaTyler W BucknerScott GillespieMary Ellen LynchShanna MattisStephanie WhittenCourtney McCrackenPublished in: Haemophilia : the official journal of the World Federation of Hemophilia (2020)
The HRDq demonstrates good internal consistency, construct and discriminant validity, and retest reliability with a low responder burden.
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