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Interrogating the Value of Return of Results for Diverse Populations: Perspectives from Precision Medicine Researchers.

Caitlin E McMahonNicole FotiMelanie JeskeWilliam R BrittonStephanie M FullertonJanet K ShimSandra Soo-Jin Lee
Published in: AJOB empirical bioethics (2023)
Conceptualizations of diversity and inclusion among PM researchers and investigators raise unique ethical questions where unexamined assumptions of the value of ROR inform study recruitment efforts to enroll minoritized and under-represented populations. A lack of consideration for resources and infrastructure necessary to translate ROR into actionable information may hinder trustworthy community-research relationships. Thus, we argue for a more intentional interrogation of ROR practices as an offer of benefit and for whom.
Keyphrases
  • healthcare
  • primary care
  • mental health
  • particulate matter
  • heavy metals
  • genetic diversity
  • health information
  • risk assessment
  • water soluble