Navigating parenthood in the face of amyotrophic lateral sclerosis: A qualitative exploration of partner experiences.
Anne Kristine BergemTrude AamotsmoPublished in: Scandinavian journal of caring sciences (2024)
Our respondents felt alone, caught between the needs of their children and partner, without necessary support from the services, and were left to handle everyday life with all new challenges on their own. Future healthcare services need to consider the challenges faced by families dealing with life-limiting illnesses. A family-focused perspective is needed, so is peer support and interventions that address both emotional and practical aspects of life with an ill partner.