Engaging Māori in biobanking and genomic research: a model for biobanks to guide culturally informed governance, operational, and community engagement activities.
Angela BeatonMaui HudsonMoe MilneRamari Viola PortKhyla RussellBarry SmithValmaine TokiLynley UerataPhillip WilcoxKaren BartholomewHelen WihongiPublished in: Genetics in medicine : official journal of the American College of Medical Genetics (2016)
This article describes the model and considers the policy and practice implications for biobanks seeking to address Māori ethical concerns. Although the model has focused on Māori aspirations in the New Zealand context, it provides a framework for considering cultural values in relation to other community or indigenous contexts.Genet Med 19 3, 345-351.