Dealing with an uncertain future: a survey study on what patients with chronic kidney disease actually want to know.
Jet MildersChava L RamspekYvette MeulemanWillem Jan W BosWieneke M MichelsWanda S KonijnFriedo W DekkerMerel van DiepenPublished in: Clinical kidney journal (2024)
Patients with CKD contemplate their future regularly and express interest in receiving prognostic information on a variety of topics. One in five patients currently do not discuss their future with CKD with their nephrologist, despite wanting to do so. These findings underline the need to tailor prognostic information provision to patients' preferences, advocating more attention to this subject both in research and clinical practice.