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Evolution of Haemophilia Care in Europe: 10 years of the principles of care.

Declan NooneB O'MahonyF PeyvandiM MakrisA Bok
Published in: Orphanet journal of rare diseases (2020)
Monitoring adherence to, and impact of, the European Principles of Care significantly assists in tracking developments and highlighting gaps. Countries' inability to report consistent and coherent data remains a challenge and hinders both provision of treatment and care for patients as well as optimal national and European healthcare systems.
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