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#BeSeen: understanding young people's views of the motivation and impacts of sharing self-harm imagery online and use of their social media data for research-a UK participatory arts-led qualitative study.

Dana DekelAmanda MarchantTodd SmithHarley MorganSarah TombsAshrafunnesa KhanomKaren InghamAnn John
Published in: BMJ open (2024)
Young people care about their privacy and use of their data even when it is publicly available. Coproduction with young people of resources to support understanding and develop innovative solutions to gaining informed consent for data sharing and research for public benefit is required. Young people from excluded communities, post-immigration RAS and males should be purposively involved in future social media research.
Keyphrases
  • social media
  • health information
  • big data
  • electronic health record
  • healthcare
  • palliative care
  • machine learning
  • quality improvement
  • artificial intelligence
  • current status
  • health insurance
  • light emitting