Development of a patient journey map for people living with cervical dystonia.

Monika BensonAlberto AlbaneseKailash P BhatiaPascale CavillonLorraine CuffeKathrin KönigCarola ReinhardHolm Graessner

Published in: Orphanet journal of rare diseases (2022)

We present the first patient journey map for CD that can be used to guide local service mapping and to compare current provision with what patients say they want and need.

Keyphrases

case report
end stage renal disease
newly diagnosed
ejection fraction
high density
healthcare
high resolution
prognostic factors
early onset
palliative care
patient reported outcomes