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Place of death of children with complex chronic conditions: cross-national study of 11 countries.

Cecilia LarsdotterJoakim ÖhlénUlrika KreicbergsMarylou Cardenas-TuranzasDonna M WilsonMartin LouckaSandra FracheLucia GiovannettiWayne NaylorYongJoo RheeMiguel Ruiz RamosJoan TenoKim BeernaertLuc DeliensDirk HouttekierJoachim Cohen
Published in: European journal of pediatrics (2017)
This study shows large cross-national variations in place of death. These variations may relate to health system-related infrastructures and policies, and differences in cultural values related to place of death, although this needs further investigation. The patterns found in this study can inform the development of paediatric palliative care programs internationally. What is known: • There is a scarcity of population-level studies investigating where children with CCC die in different countries. • Cross-national understanding of place of death provides information to health care systems for providing efficient and equal access to paediatric palliative care. What is new : • There are large cross-national variations in the place of death of children with CCC, with few deathsoccuring at home in some countries whereas hospital deaths are generally most common. • In general, deaths caused by neuromuscular diseases and malignancies occur at home more often thanother CCC.
Keyphrases
  • palliative care
  • healthcare
  • quality improvement
  • young adults
  • emergency department
  • public health
  • electronic health record