Patients' Needs Concerning Patient Education in Axial Spondyloarthritis: A Qualitative Study.

Yvonne M van der Kraan Davy Paap Niels Lennips Else C A Veenstra Freke R Wink Stan C Kieskamp Anneke Spoorenberg

Published in: Rheumatology and therapy (2023)

This first qualitative study exploring patients' experiences and needs of PE in axSpA revealed that prognosis, treatment, and coaching to self-management are important regarding content, and the combination of face-to-face contact and self-education the preferred modalities. It seems essential that patients' illness perceptions are taken into account for effective PE. These results add relevant insights for future PE guidelines in axSpA.

Keyphrases

end stage renal disease
ejection fraction
newly diagnosed
chronic kidney disease
healthcare
peritoneal dialysis
primary care
mental health
rheumatoid arthritis
current status
ankylosing spondylitis
patient reported