Pediatric Epilepsy Learning Healthcare System Quality of Life (PELHS-QOL-2): A novel health-related quality of life prompt for children with epilepsy.
Pooja D ShahMichelle YunAlan WuRachel A ArnesenMargaret StoreyMax SokoloffRenée A ShellhaasCassie TurnageErika J AxeenHoward P GoodkinAnup D PatelEvelynne WentzelAvani C ModiZachary M GrinspanPublished in: Epilepsia (2021)
The PELHS-QOL-2 is a valid HRQOL prompt and is well suited for use in clinical care as a mechanism to routinely initiate conversations with caregivers about quality of life in children with epilepsy. The association of PELHS-QOL-Medications with race merits further study.