Self-reported engagement in everyday activities following bilateral lung transplantation in paediatric cystic fibrosis: a single centre study.
Jenny-Maree MarshallEmma SchneiderShenae O'MahonyNatasha LanninGlen Phillip WestallAnoo BhoptiPublished in: BMJ paediatrics open (2023)
Time influences self-reported quality of life and engagement in meaningful life roles for children/adolescents and their parents 3 months to 18 months post-lung transplant. Our findings highlight the importance of focusing on occupational roles and occupational performance of children and adolescents when designing post-transplant interventions, suggesting a key role for occupational therapy after transplantation.