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Monitoring health related quality of life in survivorship care of young adult survivors of childhood cancer using web-based patient-reported outcome measures: survivors' and health care practitioners' perspectives on the KLIK method.

Anne MaasHeleen Maurice-StamMarloes H van den HeuvelMaria M W KoopmanJaap G den HartoghLeontien C M KremerMartha Grootenhuis
Published in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2023)
The KLIK method is a feasible and valuable tool to systematically monitor and discuss HRQOL in survivorship care. Integration of the KLIK method within the organization is essential, with structural support in reminding CCSs to complete questionnaires.
Keyphrases
  • childhood cancer
  • young adults
  • healthcare
  • patient reported outcomes
  • palliative care
  • quality improvement
  • primary care
  • affordable care act
  • pain management
  • health insurance
  • psychometric properties