Linking Individual-Level Facebook Posts With Psychological and Health Data in an Epidemiological Cohort: Feasibility Study.
Peter JamesClaudia Trudel-FitzgeraldHarold H LeeHayami K KogaLaura D KubzanskyFrancine GrodsteinPublished in: JMIR formative research (2022)
In this cohort of midlife and older women who were actively participating for over three decades, we were largely unable to obtain permission to access individual-level data from participants' Facebook accounts. Despite working with a third-party developer to customize an app to implement safeguards for privacy, data privacy remained a key concern in these women. Future studies aiming to leverage individual-level social media data should explore alternate populations or means of sharing social media data.