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Involving Patients into the LifeChamps Project: Preliminary Findings.

Emmanouil KokoroskosNatalia StathakarouErica RauhalaDespoina MantziariGeorge BaxevanisNikolaos PapachristouAntonis BilisPanagiotis BamidisPanagiotis Papachristou
Published in: Studies in health technology and informatics (2023)
Patient involvement in research has been highlighted as a major requirement for the development of products and services that cover actual patients' needs. However, there has not been an agreement on a commonly used standard for patient involvement in research, at least not in the EU, partially because of lack of common terminology and implementation methodology. Within the standardization activities of "LifeChamps: A Collective Intelligent Platform To Support Cancer Champions", this qualitative study was developed to discover patients' views for their engagement in research. This is an ongoing qualitative study of semi-structured interviews of cancer survivors aged over 65 years of age, exiting the feasibility studies of the LifeChamps project in Stockholm and Thessaloniki. Findings from the thematic analysis of this study are expected to indicate requirements for involvement of patients in research studies as participants.
Keyphrases
  • end stage renal disease
  • ejection fraction
  • newly diagnosed
  • chronic kidney disease
  • primary care
  • healthcare
  • mental health
  • squamous cell carcinoma
  • patient reported outcomes
  • single cell
  • papillary thyroid