European principles of care for women and girls with inherited bleeding disorders.
Karin P M van GalenMichelle LavinNaja Skouw-RasmussenKathelijn FischerDeclan NooneDebra PollardEveline Mauser-BunschotenKate KhairKeith GomezEllen van LoonCatherine N BagotPetra ElfvingeRoseline d'OironRezan Abdul Kadirnull nullPublished in: Haemophilia : the official journal of the World Federation of Hemophilia (2021)
Ten PoC for WGBD evolved from an iterative process among stakeholders, supported by relevant medical societies worldwide. These PoC can serve as a benchmark for diagnosis and comprehensive multidisciplinary management of WGBD, and improve awareness of their unique challenges. They offer a framework to guide HTC/CCCs in providing equitable care for all WGBD, both in their own services and in other healthcare settings. Implementation of these principles aims to positively impact the health, wellbeing and quality of life for WGBD.