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Personalized Consent Flow in Contemporary Data Sharing for Medical Research: A Viewpoint.

Ester A RakeMarleen M H J van GelderDavid C GrimBarend HeerenLucien J L P G EngelenTom H van de Belt
Published in: BioMed research international (2017)
This concept could result in optimal control for individual users, since they will answer questions about how they will share data. Furthermore, it enables users to collect data for specific studies and add expiration dates to their data. This work facilitates further discussion about dynamic and personalized consent. A pilot study with the personalized consent model is currently being carried out.
Keyphrases
  • electronic health record
  • healthcare
  • social media
  • machine learning
  • data analysis
  • deep learning