How do young people with a hereditary cancer predisposition syndrome understand and experience cancer survivorship?
Allison Werner-LinRowan Forbes ShepherdCamella J RisingAshley S ThompsonChloe HuelsnitzCatherine WilsnackPatrick BoydAlix G SleightSadie HutsonPayal P KhinchaPublished in: Psycho-oncology (2022)
AYAs with LFS struggle with the term "survivor" due to their multi-organ cancer risk, short intervals between malignancies, and evolving identities. Loved ones' cancer-related suffering informed perspectives on survivorship. Survivorship care for AYAs with cancer risk syndromes requires interprofessional interventions that address their unique biomedical and psychosocial needs. This article is protected by copyright. All rights reserved.