Meaningful outcomes for children and their caregivers attending a paediatric brain centre.
Myrna A Heydenrijk-KikkertAnn Katrin K SchmidtRobert PangalilaMarie-Claire Y De WitNeeltje E M van HarenMarie-Lise C Van VeelenMarij E RoebroeckPublished in: Developmental medicine and child neurology (2023)
Children and parent-caregivers identified meaningful outcomes covering various aspects of health and functioning, including caregiver concerns and environmental factors. We propose including those in future outcome sets for children with neurodisability.