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Investigator and participant expectations for returning non-genetic results: insights from the Rare and Atypical Diabetes Network (RADIANT) study.

Forough NoohiManu S SundaresanRochelle N NaylorLainie Friedman Ross
Published in: Journal of clinical and translational science (2023)
Our study provides important insight into how both investigators and participants simultaneously distinguish and blur clinical and research roles and responsibilities when discussing non-genetic research results and the return of these results. Further study should engage individuals from diverse racial and ethnic backgrounds and with varying levels of health literacy to understand how best to support all participants when returning research results.
Keyphrases
  • type diabetes
  • cardiovascular disease
  • gene expression
  • metabolic syndrome
  • skeletal muscle
  • weight loss
  • health information