In their own words: Safety and quality perspectives from families of hospitalized children with medical complexity.
Sangeeta MauskarTiffany NgoHelen HaskellNandini MallickAlexandra N MercerJennifer BairdKristin BardsleyJay G BerryKatherine CoppKate HumphreyMichelle M KellyChristopher P LandriganSusan MathersonAmanda McGeacheyAmy PinkhamJayne E RogersAlisa KhanPublished in: Journal of hospital medicine (2023)
To improve care of CMC and their families, hospitals can manage expectations about hospital limitations, improve consistency of care/communication, acknowledge family expertise, and recognize that family-observed quality concerns can have safety implications. Soliciting family input can help hospitals improve care in meaningful, otherwise unrecognized ways.