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Mapping the experiences of people with achalasia from initial symptoms to long-term management.

Melika KalantariAmelia HollywoodRosemary H M LimMajid Hashemi
Published in: Health expectations : an international journal of public participation in health care and health policy (2020)
This research was a novel study exploring patients' experiences and management of achalasia and mapping their journey. Two distinct phases to their journeys were identified: before and after diagnosis. Areas highlighted by this study can provide a basis for future research, in particular behaviour change to support the long-term management of achalasia.
Keyphrases
  • end stage renal disease
  • high resolution
  • mental health
  • newly diagnosed
  • ejection fraction
  • chronic kidney disease
  • prognostic factors
  • peritoneal dialysis
  • mass spectrometry
  • current status
  • patient reported outcomes