Caregiver Experiences Navigating the Diagnostic Journey in a Rapidly Progressing Dementia.
Alissa Bernstein SidemanJoni GilissenKrista L HarrisonSarah B GarrettMichael J TerranovaChristine S RitchieMichael D GeschwindPublished in: Journal of geriatric psychiatry and neurology (2022)
Findings suggest that more work is needed to improve clinician diagnostic knowledge and communication practices. Furthermore, caregivers need better support during the diagnostic journey. What we learn from studying sCJD and other RPDs is likely applicable to other more common dementias.