The impact of long-term ventilator-use on health-related quality of life and the mental health of children with neuromuscular diseases and their families: need for a revised perspective?
Jessika JohannsenLena FuhrmannBenjamin GrolleLydia MorgensternSilke Wiegand-GrefeJonas DeneckePublished in: Health and quality of life outcomes (2020)
As ventilator use was not responsible for the reduction of HRQOL and mental health our data contributes an important aspect to the discussion about life-prolonging procedures, in particular mechanical ventilation, in severly disabled patients.
Keyphrases
- mechanical ventilation
- mental health
- acute respiratory distress syndrome
- intensive care unit
- end stage renal disease
- ejection fraction
- chronic kidney disease
- newly diagnosed
- respiratory failure
- extracorporeal membrane oxygenation
- peritoneal dialysis
- mental illness
- electronic health record
- patient reported outcomes