Dementia outcomes after addition of proxy-based assessments for deceased or proxy-dependent participants.
Sarah A GaussoinMark A EspelandDaniel P BeaversRamon CasanovaKatelyn R GarciaBeverly M SnivelySally A ShumakerRobert B WallaceStephen R RappPublished in: International journal of geriatric psychiatry (2019)
Augmenting clinic-based cases with proxy-based assessments is feasible and leads to increased incident cases of dementia. When planning future clinical trials, it may be of study benefit to include a protocol of proxy-based assessments, develop strong relationships with proxies early on in the study, and attempt to maintain this relationship throughout the lifespan of the trial.