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The voices of lived experience: reflections from citizen team members in a long-term care research program.

Jim MannRoberta BishopGraham BondFaye ForbesBarbara KielochChristine ThelkerStephanie A Chamberlain
Published in: Research involvement and engagement (2021)
Despite the increased interest in citizen engagement, we feel there is a lack of understanding and support to truly integrate non-academic team members on research teams. We hope the discussion in this commentary identifies specific areas that need to be addressed to support the continued engagement of citizens and show how the lived experience can bring value to research teams.
Keyphrases
  • long term care
  • quality improvement
  • social media
  • palliative care
  • genome wide
  • gene expression