Exploring the support needs of Australian parents of young children with Usher syndrome: a qualitative thematic analysis.

Lauren Johansen Fleur O'Hare Emily R Shepard Lauren N Ayton Lemuel J Pelentsov L S Kearns Karyn L Galvin

Published in: Orphanet journal of rare diseases (2024)

Findings provide rich information for relevant support groups, policy makers, individual healthcare professionals, and professional governing bodies regarding the education of stakeholders and the development and implementation of best-practice treatment guidelines.

Keyphrases

healthcare
quality improvement
primary care
public health
mental health
clinical practice
health information