Living with rheumatic fever and rheumatic heart disease in Victoria, Australia: A qualitative study.
Jane OliverLoudeen Fualautoalasi-LamAngeline FerdinandRamona TiatiaBryn JonesDaniel EngelmanKatherine B GibneyAndrew C SteerPublished in: PLoS neglected tropical diseases (2024)
Pacific people living with ARF/RHD and their families require additional support to receive high quality management in Victoria. Introducing a patient register and a specialist RHD nurse would enhance access to treatment, as would removing cost barriers, improving clinical awareness of ARF/RHD and creating Victoria-specific patient resources.