Assessing Patient Values and Preferences to Inform the 2023 American College of Rheumatology/American College of Chest Physicians Interstitial Lung Disease Guidelines.
Reza Donald MirzaMarcy B BolsterSindhu R JohnsonAberdeen AllenElana J BernsteinJonathan H ChungSonye K DanoffCatherine FalardeauGordon GuyattIlya IvlevZsuzsanna H McMahanKiana T NesbittAmy S TurnerStacey UhlMichael D GeorgePublished in: Arthritis care & research (2024)
Patient engagement fosters a holistic approach to CPG development, leading to recommendations aiming for the best clinical outcomes while prioritizing outcomes important for patients. The patient-identified themes played a critical role in ILD guideline development and provide core elements for shared decision-making as clinicians make management and therapeutic decisions with patients with SARD-associated ILD.
Keyphrases
- interstitial lung disease
- systemic sclerosis
- case report
- rheumatoid arthritis
- end stage renal disease
- idiopathic pulmonary fibrosis
- primary care
- newly diagnosed
- chronic kidney disease
- ejection fraction
- clinical practice
- dna methylation
- palliative care
- social media
- systemic lupus erythematosus
- juvenile idiopathic arthritis