Carer-reported measures for a dementia registry: A systematic scoping review and a qualitative study.
Xiaoping LinStephanie A WardElizabeth PritchardSusannah AhernMadeleine GardamHenry BrodatyJoanne RyanJohn McNeilTess TsindosKasey WallisYun-Hee JeonSandra RobinsonKarolina KrysinskaDarshini R AytonPublished in: Australasian journal on ageing (2022)
Carer-reported measures for a dementia clinical quality registry need to include both outcome and experience questions to capture carers' perceptions of the process and outcomes of care and services. Existing carer-reported measures have not been used in a dementia registry context and adaption and further research are required.