Quality of life in children with infrequent congenital heart defects: cohort study with one-year of follow-up.
Karen Julieth Moreno MedinaMagally Barrera-CastañedaCatalina Vargas-AcevedoAlberto E García-TorresMiguel RonderosVictor Manuel Huertas-QuiñonesSilvana CabreraMaria Teresa DominguezNéstor F SandovalRodolfo José Dennis VeranoPublished in: Health and quality of life outcomes (2020)
QoL in children with I-CHD can be compromised. However, children have a better perception of their QoL when compared with their caregivers' assessments. To provide high-quality care, besides a thorough clinical evaluation, QoL directly elicited by the child should be an essential aspect in the integral management of I-CHD.