The Family Impact of a Robin Sequence Prenatal Diagnosis.
Christopher Y MaRyan M CaprioSnigdha JindalRebecca NetsonCory M ResnickPublished in: The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association (2022)
Prenatal diagnosis of RS provided tangible benefits for parents by allowing them to mentally prepare, make plans for delivery and treatment, and become educated about the condition. Parents in both groups reported a negative impact on their mental health based on diagnosis timing and the majority of parents consistently preferred prenatal diagnosis.