Meta-consent for the secondary use of health data within a learning health system: a qualitative study of the public's perspective.
Annabelle CumynAdrien BartonRoxanne DaultNissrine SafaAnne-Marie CloutierJean-François EthierPublished in: BMC medical ethics (2021)
This qualitative study reveals the openness of a sample of the Quebec population regarding the meta-consent model for secondary use of health data for research. This first exploratory study conducted with the public is an important step in guiding decision-makers in the next phases of implementing the various strategies to support access and use of health data in Quebec.