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Meta-consent for the secondary use of health data within a learning health system: a qualitative study of the public's perspective.

Annabelle CumynAdrien BartonRoxanne DaultNissrine SafaAnne-Marie CloutierJean-François Ethier
Published in: BMC medical ethics (2021)
This qualitative study reveals the openness of a sample of the Quebec population regarding the meta-consent model for secondary use of health data for research. This first exploratory study conducted with the public is an important step in guiding decision-makers in the next phases of implementing the various strategies to support access and use of health data in Quebec.
Keyphrases
  • healthcare
  • mental health
  • public health
  • electronic health record
  • health information
  • big data
  • health promotion
  • emergency department
  • human health
  • risk assessment
  • machine learning
  • data analysis